Unit 1
Weight: 14.8 kg
Nurse: Mary/Orli
You were a little un-settled going to sleep tonight and pretty mad you had to pee so often, so we gave you some Gravol and off you went. The reason you are peeing so much is your blood pressure is a little high from all the saline and blood you got today with your first Chemo treatment. As a result, they gave you a drug that would pull some of the accees fluids out of you and you are peeing 200ml/ hour.
Today you had your second LP (Spinal Tap) so you had to fast again last night. This has become pretty normal routine for us but now you are on steriods and you seem to have cravings for food now. Mom came this morning and you wanted ice cream and a blueberry muffin, we had to tell you no and you get really upset and cry to mom, it breaks her heart to see you so upset. However, you do settle down and they come get you about 11:00 am to go back up to the operating room. When we go upstairs you decide you don't want to lay down and sit in your bed as you go up. Upstairs, this time they only let me carry you into the operating room, so we go in, they give you some meds and you go to sleep peacefully in my arms; I feel you are getting used to the chaos this life has become and trust that people are here to help and not hurt you.
While they do the LP your Mom and I take advantage of you being out of your room and turn all the lights on and open the blinds. You seem to like to live like Batman these days. They bring you back just after noon and the first thing you ask the nurses for is that blueberry muffin again. The nurse can see you mean business and orders one from the kitchen before even taking your vitals. The LP went well and they took advantage of having you under to clean up your feeding tube, remove some bandages and clean up the dressing on your CVC. Seems like you have a reputation building for anxiety and everyone wants to do what they can to assist.
Just after lunch you got some special company and they have brought a truck load of supplies for us and gifts galore. Morgan, Sarah and Debbie have made a trip to Calgary to vistit and deliver all the stuff we missed in our rush out the door in Medicine Hat. Mom starts to open the gifts, but your grumpy self has come back out and you want nothing to do with them. After some time Morgan convinces you to listen to a book and you start to open up a bit.
It was great to see friends up. I enjoyed a supper out and brought Dad back some. It was hard being away from the hospital and away fork you two. I don't know how I will handle leaving the two of you tomorrow. I am excited to see Abbi and Gracie, but completely torn that our family with be separated. I realized today, at supper, how hard this truly is going to be and it is only the beginning. This going back and forth will not be easy for any of us.
Here is a picture of a quilt, donated by the Ronald McDonald house, made by volunteers. It is Thomas the Train and it is beautiful. We are so lucky to stay at such a wonderful place.
Love you buddy,
Mom and Dad
You were a little un-settled going to sleep tonight and pretty mad you had to pee so often, so we gave you some Gravol and off you went. The reason you are peeing so much is your blood pressure is a little high from all the saline and blood you got today with your first Chemo treatment. As a result, they gave you a drug that would pull some of the accees fluids out of you and you are peeing 200ml/ hour.
Today you had your second LP (Spinal Tap) so you had to fast again last night. This has become pretty normal routine for us but now you are on steriods and you seem to have cravings for food now. Mom came this morning and you wanted ice cream and a blueberry muffin, we had to tell you no and you get really upset and cry to mom, it breaks her heart to see you so upset. However, you do settle down and they come get you about 11:00 am to go back up to the operating room. When we go upstairs you decide you don't want to lay down and sit in your bed as you go up. Upstairs, this time they only let me carry you into the operating room, so we go in, they give you some meds and you go to sleep peacefully in my arms; I feel you are getting used to the chaos this life has become and trust that people are here to help and not hurt you.
While they do the LP your Mom and I take advantage of you being out of your room and turn all the lights on and open the blinds. You seem to like to live like Batman these days. They bring you back just after noon and the first thing you ask the nurses for is that blueberry muffin again. The nurse can see you mean business and orders one from the kitchen before even taking your vitals. The LP went well and they took advantage of having you under to clean up your feeding tube, remove some bandages and clean up the dressing on your CVC. Seems like you have a reputation building for anxiety and everyone wants to do what they can to assist.
Just after lunch you got some special company and they have brought a truck load of supplies for us and gifts galore. Morgan, Sarah and Debbie have made a trip to Calgary to vistit and deliver all the stuff we missed in our rush out the door in Medicine Hat. Mom starts to open the gifts, but your grumpy self has come back out and you want nothing to do with them. After some time Morgan convinces you to listen to a book and you start to open up a bit.
It was great to see friends up. I enjoyed a supper out and brought Dad back some. It was hard being away from the hospital and away fork you two. I don't know how I will handle leaving the two of you tomorrow. I am excited to see Abbi and Gracie, but completely torn that our family with be separated. I realized today, at supper, how hard this truly is going to be and it is only the beginning. This going back and forth will not be easy for any of us.
Here is a picture of a quilt, donated by the Ronald McDonald house, made by volunteers. It is Thomas the Train and it is beautiful. We are so lucky to stay at such a wonderful place.
Love you buddy,
Mom and Dad
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