April 10th, 2013

Wednesday
Unit 1
Weight: 13.5 kg
Nurses: Melissa/Kaitlyn

I couldn't wait to see you and dad.  The best sight was of you, without and cords attached to the IV pole.  You are able to move around a lot easier.  Your eyes are not as puffy and I see my Kallum again.  I have brought more gifts and cards for you, as well as a beautiful quilt from Nanni (see picture).  Your bed looks more like home and less like the hospital with your new quilt.

Dad also got you started on your "Beaded Journey."  I took a picture of the start of your bead strand.  The Beaded Journey is a way to honour and tell the story of your treatment path through beads placed on a rope.  Beads come in different shapes and colors stand for the many important points, both medical and non-medical, along your treatment path. 

Today was the first full day off the Morphine and with no IV's you got the hang of being able to walk around with some freedom from the pumps.  The volunteers came to ask of you wanted to come play bingo (mom was not here yet) but you responded with an over whelming NO.  They asked if you wanted to stay in your room and play via walkie talkie, yet another no.  They asked to leave the stuff just in case you change your mind, I explained that these days mostly "no" meant "no," but we would try next week.  Then guess what, not 5 minutes later we were in the sun shine room playing bingo, the only thing being more important than being stubborn was making me look foolish to the nurse. ;)

Your food cravings on the steroids are getting funnier too. New cravings are peanut butter on carrot muffins, animal crackers dipped in apple sauce, cinnamon raisin muffins with peanut butter (actually tried this one and its on the menu for my breakfast tomorrow).  At about 9:00 pm, you want to walk to the fridge to get a Jello so we head to the kitchen.  When we get there you not only pick a Jello, but want a pudding and a juice box too.  As we leave the kitchen, the nurse says she is getting herself a piece of pizza, guess what, now K wants pizza too and don't forget a piece of toast with peanut butter.  Another parent was telling me about her daughter demanding tacos at like 1:30 in the morning, can't wait for those days with you.

Love you K, glad to see more and more glimpses of you.

Mom and Dad