Unit 1
Weight: 14.05 kg
Nurse: Micaela/Ashley
Official Diagnosis Day!
Tonight we finally were given your full diagnosis. The type of Leukemia you have is ALL, Mature B cell. This now gives the team direction for treatments, etc. Tomorrow you will have many activities in order to get the chemotherapy started.
During the day you rested. You were in and out of sleep, but you were peaceful. You still don't like when a nurse comes in, especially to put the cuff on for your blood pressure. You told her to "stop" and "I don't want that." Your heart rate does increase when the nurse comes in the room, but your resting heart rate has come down since the beginning of all of this.
You did not eat anything today. You were fasting in the morning in hopes of an early diagnosis, which would mean surgery for a central line, but that didn't happen. You were fed by your NG at around 2 pm. You did get sick on it so we needed to slow down the feeds.
It was pizza day on Unit 1, but you chose not to participate. Your Dad and I went to get some pizza and pop.
You are still on morphine for pain control, but we did try Tylenol today too. It is suppose to be good for bone pain. You seemed to perk up more on it.
I added a picture of your shelves with some of your bears and cards and a pic of you sleeping peacefully.
Love Mom and Dad
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