Unit 1
Weight: 14.5 kg
Nurses: Becky/Renee
Again I am taken back when I arrive to see you and your dad. This time you have lost the top portion of hair on your head. It is very hard to look at. It is a visible sign that this is cancer and it has taken over your little body. It is not fair...
Your hair is thinning all over, but you have a definite bald spot at the front of your head. After getting over the initial shock of your new image, it does kinda look like an old man's hair style. I am going to post pictures. At first this seems wrong but this blog is ultimately for you and I think you would like to see the different stages you go through.
On a good note, your swelling has come down a lot today. If you have followed your weight stat you will notice a decrease of approx. 1.5 kg. Good news also came last night, your White Blood Count is 0.1, that should mean that your mouth will start to heal and can get back to normal. Also, as we drained off lots of fluid last night, close to a liter, your electrolytes held so all around you are more stable.
Last night was another night with little to no sleep for us both. We had switched you from morphine to hydro-morph at 3:00 pm yesterday and your level of discomfort seemed to grow into the night. You looked like you were sleeping at times but continued to grow in pain. At one point, the doctor came into look at you and said your back probably hurt from the way you were sitting, so Becky and I worked to sit you up better and gave you a hot pack. At midnight we gave up, called APS (Acute Pain Service) and tripled your drugs to try and get you to settle down, heart rate was in the 180's by now. Today, the APS team was back to see how your pain is doing, they found you sleeping and thought things must be ok and would be back in the afternoon. However, when you awake your agitation just seems to grow and we can't get you to settle, APS comes back and we change up one more time. You stay on the same drugs, but back with constant basal of drugs and they add a bolus button to help get you through the bad times. On a side note: you are increasing your dose of Hydro-morph and mom is trying to decrease her dose of Hydro-morph. I hope we have a balance soon for your pain management as too much pain meds makes you drowsy and not enough is just not good.
Also new is you are on isolation as you have a runny nose and have developed a cough; they think you may have a cold. Nurses now to get wear masks and gowns when they come in to your room. This helps protect the other patients on Unit 1. You had a sample sucked out of your nose to determine what exactly you have going on. It is hard to determine if you actually have a cold as you continue to battle mucisits.
Tomorrow is another day. I hope your WPC increases as this will help speed up the healing phase.
Love you buddy,
Mom and Dad
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