Unit 1
Weight: 13.2 kg
Nurse: Shantel / Kevin
Induction Stage Begins
Friday was a pretty busy day in Rm. 114. You woke up in a good mood and didn't complain too much about not being able to eat. At around 10 am you become a bit moody when they come to put cooling cream on your back, as you are scheduled to have a bone marrow aspiration done. They are able to take you right away, at 11 am, for the procedure. It is strange to say but these procedures are becoming almost "normal." It is not as scary for us and we go through the motions like old pros. You don't worry as much when we leave your room, we get to the procedure room and you hug dad as he holds you in his arms and they inject your medicine to make you go to sleep. Simple now, which seems so crazy to me. This is our "new" normal.
You wake up okay from the procedure and we head back up to your room. You are excited to finally eat. I almost get grossed out watching you eat. You devoured dunkaroos, bear paws, cereal bars and at the same time asking where your lunch was. Your lunch arrived and you were excited to see chicken nuggets and fries. You decided to dip the french fries into ranch this time.
Here are some pictures of you enjoying snacks and treats from the treat pail and then eating your lunch. That's right, we have a whole bucket of treats for you from friends and family!
We had some special visitors come to see you. Claire, Heather, Megan and Bridget came and brought some gifts as well as a truck load of baking. You are your typical self and don't acknowledge them. I catch you again listening to our conversation and then eventually fall asleep. Later on, you do wake up and try the baking, which you love and continue to love.
Today we start round two of your chemo-therapy. You have new meds, which are higher concentration then last round. You seemed fine with all the meds going into your IV. However, you are bothered by the bone marrow aspiration you had earlier in the day and you have a lot of pain in your lower back. They are giving you Tylenol for the pain.
You are becoming very moody and demanding. This is a side effect of the steroid and we are really starting to see that. Last night, I went out for a wonderful and much needed supper with my friends and came back to give dad some supper. Once I was back at RMH, I get a call from your dad. You keep demanding a hot dog and the kitchen has closed for the night. So, the girls and I drive to DQ to get you a hot dog and run it back to the hospital.
Dad and you did not have a good night. You had a lot of pain. I hope you get more sleep today (Saturday).
Saturday morning, you are called for your LP at 9 am. This is a bonus because you were just on a wait list, since it is the weekend, and you could have been called as late as the afternoon. Your LP went as scheduled, with no hiccups. You recovered well and wanted to go for a walk the minute you came back to the room.
The nurse did inform us that you need a dressing change over your broviac. This was not a pleasant experience for you or us. What scares me the most is that when we go home or even over to RMH, your dad and I are responsible for your dressing changes. I hope you start getting use to these dressing changes soon.
You continued with IV chemo meds too. You seem to be reacting well to the meds. We did give you a bit of morphine, as you were not settling. I think your back is still bothering you from yesterdays bone marrow aspiration.
We spent the remainder of the day eating, watching TV and playing with new toys. Overall it was a good day.
Love you to the moon and back,
Mom
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