Unit 1
Weight: 13.7 kg
Nurses: Amy/Laura
So, you have become an eating machine. I cannot believe how much you can eat in a day. This round of chemo you are not on the steroid, which usually increases appetite, but you eat like you are. Tonight you ended up eating the supper dad brought over from RMH. It was pizza and Greek salad and I really didn't think you would eat the salad, but you ate that too! Your weight is increasing each day which is reassuring because if you experience any side effects this round you will be at your highest weight since you have been in the hospital, without concern its fluids as your output has been real good as well.
You have had no reactions to the new chemo meds. You have maintained a great BP and your mood never changes. We haven't seen any nausea; however, you are on anti-nausea meds like usual. There are no sores present anywhere on your body, which is good news too.
Today, you were able to sneak out of your room in between your chemo med administrations and join Mark, the music man, in the Sunshine Room. You are not allowed to leave your room while on IV chemo meds and you have them finishing at 1:00 pm and another starting at 3:00 pm so we were able to go at 1:30 pm. You enjoy playing the drums and singing to many of the songs. You were so tired, but you give all your energy to enjoying your time with Mark. I think this is one of your favorite past times when you are on the Unit. The rest of the day we spent coloring, playing toys, completing sticker books and reading books. We did a bit of play doh too and had an hour nap.
I wanted to let you know that when we were home we had the opportunity to meet a family that is going through a similar journey as us. They have a 2 year old boy (almost 3) who was diagnosed with Leukemia in September 2012. Through facebook, friends put us in contact with each other. Anyways, we went to their house for a play date. They have a older girl who is the same age as Gracie, so both you and Gracie had a great time playing with them. It was really nice for dad and I to talk with them about their journey. It is nice to share with people who get what we are going through, know the language, and just get it. You have ALL type and he has AML, which are two totally different treatment plans. He has a long, drawn out plan where the counts recover slowly on their own and therefore has more time in between treatments where your plan is back to back with a shorter plan. You need GCSF to boost your counts to speed up your recovery time. It was interesting to hear about what they have gone through already and some of their struggles and successes. The highlight of the visit was seeing you and your new friend standing side by side at the play kitchen, just being boys. You two have gone through so much already, but are real warriors. Both of you are a true inspiration of courage and bravery. I look forward to another visit when we get back to the Hat.
Well, I am hoping for another good day tomorrow!
Love you buddy,
Mom
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