May 22nd, 2013

Wednesday
Unit 1
Weight: 13.35 kg
Nurses: Micaela/Sarah
WBC: 0.2

So we are on the way up, but slowly.  One doctor thinks that since your Mucositis was so bad this time that your counts were actually climbing, but were needed to fight the Mucositis.  Anyways, we are hoping that the counts will continue to climb so that you can break out of the joint by this weekend.  We are really hoping that you could come home on Friday so Dad can come to the dance recital, but we can't focus too much on that date as it is a bit of a long shot at this point.

Your mood has definitely improved.  When I came in this afternoon you were sitting on the day bed (bed by the window) eating M & M's out of Micaela's hand.  Coloring has become your new favorite past time.  Today you managed to color with Micaela, Renee and the day before with Megan; what a little flirt.  Lol!  I will post some of your pictures you have colored with your nurses.  Also, we have finished your Elmo sticker book, you loved doing it.

Your food of choice right now is blueberry muffins.  You just want the blueberries in the muffin so we pick them out for you.  Chocolate milk is still a favorite but you do drink juice. Dad puts PEG (laxative) in your juice, and we let you know this.  Now you say, "I drink juice, it makes my poop soft."  You are too funny!

We have decreased your pain meds early this time as we can see that you are improving by the day.  Last time you were on the meds longer but it also took longer to get the right dose to provide relief.  This time we got on it right away and could reduce sooner to cause less sedation as you improved. Your swelling has come down in your face and your mood is a lot happier.  We actually hope that tomorrow we can go down to oral Morphine, which would be another step in hopes of going home.  We also decreased your TPN (total paranatal nutrition) to help increase your appetite.  Again, you have to eat more so that they will be comfortable that you are getting enough nutrition before we leave the hospital.

I have many pictures collected on my phone so I thought I would include them with this post.

Love you more then you will ever know,

Mom