June Update

Update:

I wanted to post an update as a lot has happened in the last couple of days.  Like I mentioned before, you are on different chemo meds this round and we are all waiting to see what kind of reactions you will have to them.  So far, so good!  Actually after day 5 (June 3rd) you were released from the hospital.  You did have to have an ultrasound, chest xray and a blood transfusion before you left, but you did eventually go over to RMH.  You and dad are staying at RMH, just to be close to the hospital, in case you start to develop some side effects from the chemo.  You also have an MRI today, Thursday, so we would have had to have you back anyways.

Your last couple of days have been spent biking and walking with Dad.  You love the duck pond, which is located between the hospital and RMH.  You even "ran" into one of  your favorite nurses, Megan, when you went down to visit the ducks.  You were pretty amazed that Megan was out of the hospital too!  Lol!  Dad has taken you for quite a few truck rides too.  This is great except gas is 131.9/L right now, which is crazy!  We are also very lucky to have Auntie Chandra and Uncle Brandon's house to go to.  Auntie Chandra is on maternity leave right now and is home during the day.  You and dad have made some visits to their house too and you enjoy playing with Carter and Mailey.  It is difficult to find things for you to do when we need to keep you in somewhat of a bubble.  We are just happy you are out of the hospital.

It is Thursday right now and I still don't know what the weekend will look like for us.  This is the frustrating part of this whole process.  I am a planner and I have really had learn to take it day by day.  Some professionals have said that you could possibly go home for the weekend where others say that you need to stay in Calgary.  Hopefully, when you have your MRI today, Dad can find out some more answers.  I would love for you to come home.  After this weekend, you might not have an opportunity to come home again until after the next cycle.  We are just worried that since your counts have not reached 0.0 yet that you may require more blood transfussions.  It is a guessing game.  We want you home so bad but don't want to have to turn around and come right back to Calgary.  I am praying you do get to come home, even if it is for just a few days.

I wanted to mention that Dad posted your new theme song on top of the blog.  It is not spam...lol, it is a link to the song Inner Ninja.  The story behind this song is that a few weeks ago, your dad had the music channel on in your room.  When the nurse came in she caught you dancing and bouncing to the song, Inner Ninja.  She started dancing and singing with you.  The next couple of days you had mouth sores and spent most of your time in bed.  The nurses would come in and try singing this song to you and sometimes you smiled but you were not in the mood to dance.  Anyways, you did get better and before you were released, the nurses turned on this song at the nurses station and all sang and danced as you were leaving the unit.  You were shy, but smiled back at them.  This time, when you came back to the hospital, you have requested dad to play this on his computer.  The nurses come in and dance with you all the time.  You now have a bum shake and karate chop moves to accompany the song.  I love this song now and think it does have some meaning to this whole situation.  You do have an inner Ninja inside of you and you will fight this cancer with all that you have. You are such a warrior!

Love you more then you know,

Mom

Side Note:

I just wanted to mention that many people have said they have left comments, but we have not seen them.  We have never seen any comments that have been put up on the blog.  Feel free to email us anything and thank you for all your support.

rulmer@telus.net
leoulmer@telus.net