May 13, 2013

May 13, 2013
Monday
Ronald McDonald House

So we had hoped for some freedom on Friday last week and to be discharged Saturday, but the schedule changed a bit.  Your Methotrexate levels had gone up twice between tests so you had to stay in for hydration, basically same routine as last time, but we caught it much sooner.  The Methotrexate is the drug that most likely caused your mouth sores, so hearing it went up made me a little edgy.  Good news is the mouth sores didn't get worse and with the help of a doctor we now have documented the cause of the Methotrexate increases and so the same thing should not happen again. They believe that since there has never been positive result for abnormal cells in the spinal fluid, significant Methotrexate is passing from the spine and into the blood after the LP's.  So when the IV Methotrexate clears after hour 48 and hyrdration is stopped the next 2 LP's increase the level.

Enough medical talk though, Sunday came you cleared your levels, we got some more meds  and we were discharged about 3:00 pm to Ronald McDonald House.  Yes, that means finally you have also cleared your viral test and are no longer on isolation and can be at RMH.  After toting the 100 pound suitcase back with Poppa we thanked him for all the help and he headed home.  It was back to you and I and you were not all too confident in the fact that you were free.  I thought a drive in the truck might help anchor the reality that we were out but not soon after that we were invited to the Holtz's for dinner.  When I asked if you wanted to go you were all smiles and when we got there you are a kid again, my heart boils over with excitement.

We have spent the last couple of days driving around.  You have a lot of mood swings and tell me what I can and cannot do.  I know that this part of the Predisone but it does make it tough for me.  You told me that I wasn't allowed to have supper because you didn't want to go down to the kitchen.  Anyways, mom will back on Tuesday night and we have an appointment at the hospital on Wed morning.  We are hoping that you are able to be go back to Medicine Hat after the appointment.  Fingers crossed.

Love,

Dad