May 17th and 18th, 2013

Friday and Saturday (am)
Unit 1
Weight: no change
Nurses: Kathy / Megan
WBC: 0.1 ANC: 0

Not much has changed yesterday or this morning.  Your platelets are down again as well as your red blood cells so they are thinking you may need another transfusion.  Your WBC is not climbing yet, but hoping for a change tomorrow.  We are thinking we are finally comfortable with your pain meds.  Dad and I have been working with APS and we have your basal going up at night, but back down during the day.  We can always press the PCA for an extra boules.  Once your counts start coming up we can then decrease your pain meds.

You still struggle with eating.  Drinking doesn't seem to be a problem.  Chocolate milk is your favorite by far and we order it for breakfast, lunch and supper.  You try to eat revels but want them melted just right so it is not too cold but not melted too much.  Of course, dad and I can never get it right for you.

Friday night was typical.  You were up quite a bit and had your best sleep from 5 am to 8 am. You do have naps during the day.  We are hoping you can start sleeping through the night again so you don't need so many naps during the day.

We are expecting many visitors today, which is great for dad and I.  I hope that you up for conversation and a little play time.  Your favorite game right now is the match game; you play the board game as well as the game on the iPad.

Yesterday you ended up giving Cathy a kiss near the end of her shift, Megan is still waiting today for the kiss but you are not ready just yet.  You are pretty miserable right now, but I am hoping with your nap your demeanor will change.

Lots of prayers and positive thoughts are coming your way.  I hope that with my next post your counts will be climbing, the mouth sores start healing and you are back to your old self again.

Love you to the moon and back,

Mom