June 11th, 2013

Wednesday
Unit 1
Nurses: Danielle, Sarah, Elly, Kelly, O. Laura, Jayne and Janessa
Weight 13.5Kg +/-

So its been awhile since I blogged, as your mom said we had a great time out.  We walked (you in the stroller) a lot of parks and pathways that I never enjoyed when I actually lived here.  However, as mom said, all good things must come to an end and we are back in hospital.  On Monday, your first blood culture came back positive and so we needed to redraw blood again.  We need to get 3 consecutive negative cultures back before we are released.  This meant the earliest we would be getting back out is Friday, the same day we were hoping your counts would be high enough to get another does of chemo meds that are part of this phase of treatment.

Things in hospital really have been different though, you feel 100% and have a ton of energy.  You spend days out at the nurses cluster causing a fuss about who gets to sit with you.  They have you doing "charting" and putting stickers on things, highlighting or play minesweeper.  Megan, (your best friend) finds you a plasma wiggle car and a trike and you guys are racing down the hall ways.  Your first day on the wiggle car is a little sketchy but you really have it dialed in by day 2.  The big change is the fact we can now lock your lines between meds, so every 8 hours you get 2 hours of meds but are free for the rest.  Tuesday, for example, you charm your way up to the nurses desk again and I even get 20 minutes to eat lunch alone.  At first it seems nice but to be honest I quickly begin to miss you, even when your yelling for me not to talk to you.

Mom came back up to see us today and we are still waiting on an update for your blood cultures. Your energy is still high, despite your red blood cells being low.  Mo-Mo, Chris, Gavin and Kaden all stop in for a visit and you are just a normal kid.  They cannot believe the energy in your actions, your voice and in your eyes.  However, late afternoon is slightly muted as it turns out the bacterial infection you are carrying is going to mean 14 days in-hospital with IV antibiotics every 8 hours.  Good news is it will not effect your Chemo schedule and we are not on isolation, so the plan is to schedule meds so we can leave to RMH each day from noon till 8pm.

Pics are from the visit with your sisters and playing around the hospital.  I know they are sideways...I am trying to figure that out as the pics are from my phone.

Love Dad