July 4th, 2013

Thursday
Unit 1
Weight: 14.2 kg
Nurses: Megan (10) / Cathy

Yesterday was not a good day for you.  Something was causing your stomach to be upset and you ended up getting sick multiple times.  This is the first time throughout your whole protocol that you have been sick.  You are not getting new chemo drugs, in fact you are getting the same chemo drugs and doses as the last treatment.  They have given you some anti-nausea drugs as well as gravol to try to settle your stomach.  You and dad did not have a very good sleep in between getting sick, putting in eye drops and one hour beeps on your pump due to chemo meds throughout the night.

This morning I was expecting a tired, sick little boy, however I found you sitting up eating breakfast and excited for the parade to start.  Your dad was amazed and annoyed (lol) at how quickly you turned around.  Literally half and hour earlier you wouldn't even wake up when the doctor was in the room and now you are walking all around your room.  Anyways, since you were receiving chemo this morning, you weren't able to go outside to see the parade.  The charge nurse did manage to find a room available with a great view of the parade route so we moved there for the parade.  You were through the roof excited for the parade and loved your new cowboy hat from the hospital.  You continued to tell me what things were before I could even see them.  Your hand was always waving through the window.  The horses and the helicopter (flying up above) were your favorites.  It is truly amazing to think that there is a special stampede parade just for ACH.  Seeing all the children's faces light up when the parade start is something I will never forget.

Your day today continued on a good note.  You have not gotten sick anymore (knock on wood) and you managed to have a good nap this afternoon.  I can tell that you don't have the energy that we are use to, I think yesterday definitely took a lot out of you.  We decided to take you off the gravol to see if you are able to keep everything down.  I hope the worst of it is over...fingers crossed.

Here are some pictures from the parade!

Love you to the moon and back,

Mom