July 1st, 2013

Monday
Home / Unit 1
Weight: 14.4 kg
Nurse: Micaela

Happy Canada Day!

Well it has been exactly 3 months since your official diagnosis.  It has been a life changing couple of months and definitely not the easiest.  You started out so weak and unable to eat to now a 2 year old that is full of energy and loving life.  It is hard to see you with your limitations, but you do make the best out of every situation and do not let illness get in the way.  You teach me everyday to live it to the fullest and appreciate the simple things in life.  I know that we have a long journey still ahead of us, but it makes me feel better knowing you are healthier and stronger going into each treatment.

You left today to go back to the ACH.  This time you weren't too upset, but I think it is because we had been talking to you about it quite a bit.  There were tears and some upset kids when you left but we all know that you will be back soon.  These good-byes seem to get harder for me but easier on you. 

The time that we spent with you at home was amazing.  We had the opportunity to hang out with family and great friends.  I loved seeing you interact with your sisters, cousins and friends...it was like you had never left.  The weather was beautiful and we took advantage of being outside riding bikes, going for walks and trying to stay cool.  With your broviac tubes you are not able to go into a swimming pool, get really wet or even attempt the beach.  Your sisters were very understanding and we did not fill the pool up too much and they kept a close eye on you.  We also stayed away from the beach when we had a short visit to Elkwater; this was not easy but everyone was understanding.

While you were home, we had the chance to visit some people that have helped us along the way.  It was nice for everyone to see how healthy you are.  I have no words to express how thankful we are to everyone who has reached out to support us in one way or another.  We would not be here without your backing. 

Tomorrow you will start the second cycle of Consolidation.  Your first cycle did not show any side effects so I am hoping this is the case again.  You will get a LP (lumbar puncture) to start of your treatment and will need to be sedated for this.  I hate that you need to be sedated for all these procedures but I have to remember that they are becoming less and less.  In fact, this should be your second last LP in your protocol.  I am coming up on Wednesday to help dad.  Your chemo is through the night and night, which means you and dad will be up every hour and need to do eye drops every 4 hours.  It will last 5-6 days and then you will be done!

We miss you like crazy already.  The girls and I cannot wait for you to come and home!

Love you buddy,

Mom