The waiting game...

Nov. 24
Sunday
Home

It has been awhile since my last update and I am trying to commit to at least once a week, but these days I am falling behind :(

The biggest update is that on Thursday we were at Children's Hospital for a variety of important tests. A MRI, bone marrow aspiration and biopsy as well as lumbar puncture were done to you while under sedation. You did very well and woke up a little grumpy, but within 20 minutes you were in a good enough mood to go for an ultrasound. Your dad and I were so proud of you, you are such a little trooper. The purpose of these test results are to tell us that there are no more cancer cells, which would mean you were completely cancer free. We will get the results on Wednesday and the wait is killing us. I do play in my head only good news and pray for the results we want but I also know I need to be prepared for unexpected news. I don't actually know if I can be prepared for any other news then the fact that the cancer is gone. It has been a lot of sleepless nights between your dad and I, Wednesday cannot come fast enough. As well as the test results, you will also have Echo, EKG and chest x-Ray on Wednesday to finish off your tests.

I almost forgot but on Wednesday we will have a consultation with the surgeon who will hopefully remove your central line (Broviac). As long your results are good we can proceed with the removal of your Broviac. I honestly cannot wait and I pray that it can happen before Christmas. You are so limited in your activities and it keeps your dad and I on high alert no matter what you are doing. Your locks are becoming weak and therefore opening up regularly, even with them taped.  With your Broviac removed we can finally take you swimming, skating and even have a bath.

At home you have been a bundle of energy, which is great....I think! We have really tried to get back to routine as well as expectations. You are having a difficult time with some expectations and have learned that consequences are not always easy to understand. We are coping and all adjusting.
I want you to know, you have many amazing people praying and cheering you on. This week we need all the prayers and positive thoughts as we get the long awaited results. No matter what we will continue to fight on with your army behind us.
Love you to the moon and back,
Mom